Today is Rare Disease Day. According to the website:
A disease or disorder is defined as rare in the USA if it affectsMy wife Ann has a rare disease called Neuromyelitis Optica.
fewer than 200,000 Americans at any given time.
Do you know anyone with a rare disease?
My little granddaughter, Ella, has cystic fibrosis, a genetic disorder. The CFF says 30,000 in the US have it, but those in the community feel there must be more. Great strides are being made toward more effective drugs, and we pray that Ella's future will be bright. She certainly brings brightness to all around her.
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